https://embassy.science:443/wiki-wiki/api.php?action=feedcontributions&feedformat=atom&user=Hughdd 2026-04-21T19:52:45Z User contributions MediaWiki 1.35.11 https://embassy.science:443/wiki-wiki/index.php?title=Resource:80680c32-bee0-4588-a2b0-7370a9f02228&diff=2883 2020-08-09T14:35:20Z

<p>Hughdd: </p> <hr /> <div>{{Resource<br /> |Resource Type=Cases<br /> |Title=The Ethics of Collecting Genetic Data From Indigenous People<br /> |Is About=This case is about the publication of the analyses of the DNA from 4 men in Namibia, which occured in 2009, and the consequenses of that publication. This is a factual case.<br /> <br /> '''Key quote:'''<br /> <br /> &quot;Without studies that look at each underrepresented population, genetic tests and therapies can’t be tailored to everyone. Still, (...) collecting that data could exploit the very people the programs intend to help.&quot;<br /> <br /> '''The core ethical problems include:''' <br /> <br /> * Respect: treating ethnicities as mere objects of scientific and/or commercial interest.<br /> * Consent: <br /> ** A genome belongs to a whole population, not just to an individual, so obtaining individual consent for DNA analysis may not be sufficient.<br /> ** Collected data may be reused for purposes which were not originally consented to.<br /> |Important Because=Historically, participants in genetic studies predominantly had European ancestry. To better understand how different groups have different medical challenges, it is important to chart the genomes of ethnic groups worldwide. Yet, the way in which this is done poses ethical challenges. &lt;ref&gt;https://qz.com/1719314/the-thorny-ethics-of-collecting-genetic-data/&lt;/ref&gt;<br /> &lt;references /&gt;<br /> |Important For=Researchers; Policy makers<br /> }}<br /> {{Link<br /> |Has Link=https://qz.com/1719314/the-thorny-ethics-of-collecting-genetic-data/<br /> }}<br /> {{Related To<br /> |Related To Theme=Theme:D44fd22a-ed5d-4120-a78b-8881747131fd;Theme:88b73549-fec0-4fb9-99f6-fe1055d6b76a;Theme:61d9a3f5-8f8b-4f6f-8363-fa53f959f131<br /> }}<br /> {{Tags<br /> |Has Timepoint=2009<br /> |Has Location=Namibia; United States<br /> |Has Virtue And Value=Respect<br /> |Has Good Practice And Misconduct=Consent; Research on Indigenous Groups<br /> |Related To Research Area=Health biotechnology<br /> }}</div>

Hughdd https://embassy.science:443/wiki-wiki/index.php?title=Resource:Ad7f9f5c-a519-4744-a7c6-5fba091e9264&diff=1659 2020-05-06T10:54:16Z

<p>Hughdd: </p> <hr /> <div>{{Resource<br /> |Resource Type=Guidelines<br /> |Title=The Ethics Codes Collection<br /> |Is About=The Ethics Codes Collection is a large repository of ethics codes and guidelines: it contains 2500+ codes from 1500+ organisations. It goes beyond research ethics and integrity, and includes ethics codes in business, government, non-profit organisations, and engineering organisations. It is maintained by the Center for the Study of Ethics in the Professions (Illnois Institute of Technology).<br /> |Important Because=While the Embassy of Good Science is focused on research ethics and integrity, it is interesting for those reflecting about scientific integrity to understand how other organisations construct their ethics codes.<br /> |Important For=All stakeholders in research; Research integrity trainers; research integrity researchers; Research Integrity Officers<br /> }}<br /> {{Link<br /> |Has Link=http://ethicscodescollection.org/<br /> }}<br /> {{Related To}}<br /> {{Tags<br /> |Involves=Illinois Institute of Technology Hermann Hall<br /> }}</div>

Hughdd https://embassy.science:443/wiki-wiki/index.php?title=Resource:Ad7f9f5c-a519-4744-a7c6-5fba091e9264&diff=1658 2020-05-06T10:52:47Z

<p>Hughdd: </p> <hr /> <div>{{Resource<br /> |Resource Type=Guidelines<br /> |Title=The Ethics Codes collection<br /> |Is About=The Ethics Codes collection is a repository of ethics codes and guidelines: it has collected 2500+ codes from 1500+ organisations. It goes beyond research ethics and integrity, and includes ethics codes in business, government, non-profit organisations, and engineering organisations. It is maintained by the Center for the Study of Ethics in the Professions (Illnois Institute of Technology).<br /> |Important Because=While the Embassy of Good Science is focused on research ethics and integrity, it is interesting for those reflecting about scientific integrity to understand how other organisations construct their ethics codes.<br /> |Important For=All stakeholders in research; Research integrity trainers; research integrity researchers; Research Integrity Officers<br /> }}<br /> {{Link<br /> |Has Link=http://ethicscodescollection.org/<br /> }}<br /> {{Related To}}<br /> {{Tags<br /> |Involves=Illinois Institute of Technology Hermann Hall<br /> }}</div>

Hughdd https://embassy.science:443/wiki-wiki/index.php?title=Resource:31097e7a-2080-4aee-b60d-e1e1a5b15888&diff=1657 2020-05-06T10:40:04Z

<p>Hughdd: </p> <hr /> <div>{{Resource<br /> |Resource Type=Guidelines<br /> |Title=ICMJE Conflict of Interest Disclosure Form<br /> |Is About=This form allows authors of a manuscript to share information with readers about the interests of the authors, and about anything that could influence how the manuscript is read.<br /> |Important Because=Conflicts of interest, especially when not disclosed, are one of the core challenges to research integrity.<br /> |Important For=All stakeholders in research<br /> |Has Best Practice=Following should be disclosed:<br /> <br /> * Funding received from government, commercial, private foundation, etc. for conducting the research<br /> * Relevant financial activities outside the submitted work.<br /> * Intellectual Property<br /> <br /> &lt;br /&gt;<br /> }}<br /> {{Link<br /> |Has Link=http://www.icmje.org/conflicts-of-interest/<br /> }}<br /> {{Related To}}<br /> {{Tags<br /> |Involves=ICMJE<br /> |Has Virtue And Value=Transparency<br /> |Has Good Practice And Misconduct=Conflict of interest<br /> }}</div>

Hughdd https://embassy.science:443/wiki-wiki/index.php?title=Resource:10e386f6-6881-4d88-bc72-e6391597029e&diff=1656 2020-05-06T10:25:30Z

<p>Hughdd: </p> <hr /> <div>{{Resource<br /> |Resource Type=Guidelines<br /> |Title=The Singapore Statement on Research Integrity<br /> |Is About=After the second World Conference on Research Integrity, various stakeholders set out principles of research integrity.<br /> |Important Because=It represented the first international effort to develop a global code of conduct on research integrity. An additional purpose was to challenge governments and research institutions worldwide to think about these issues and develop their own guidelines or codes of conduct.<br /> |Important For=Researchers; All stakeholders in research<br /> }}<br /> {{Link<br /> |Has Link=https://wcrif.org/guidance/singapore-statement<br /> }}<br /> {{Related To}}<br /> {{Tags<br /> |Has Timepoint=2010<br /> |Has Virtue And Value=Honesty; Accountability; Good stewardship; Professional courtesy and fairness<br /> |Has Good Practice And Misconduct=Integrity; Adherence to Regulations; Methodology; Research Records; Authorship; Open data; Publication Acknowledgement; Peer Review; Conflict of Interest; Public Communication; Whistleblowing; Responding to Irresponsible Research Practices; Research Environments; Societal Considerations<br /> }}</div>

Hughdd https://embassy.science:443/wiki-wiki/index.php?title=Resource:9cde8f03-0578-4309-a81a-bdbd23f89fda&diff=1655 2020-05-06T10:18:53Z

<p>Hughdd: </p> <hr /> <div>{{Resource<br /> |Resource Type=Guidelines<br /> |Title=Linee guida per l'intergrita nella ricerca<br /> |Is About=This document is the CNR (Centro Nazionale delle Ricerche) guidelines on research integrity. A first version was published and updated in 2019.<br /> |Important Because=This document describes the RI framework for CNR institutes.<br /> |Important For=Researchers; All stakeholders in research<br /> }}<br /> {{Link<br /> |Has Link=https://www.cnr.it/sites/default/files/public/media/doc_istituzionali/linee-guida-integrita-nella-ricerca-cnr-commissione_etica.pdf?v=1<br /> }}<br /> {{Related To}}<br /> {{Tags<br /> |Involves=Commissione per l'Etica della Ricerca e la Biotica del CNR; Centro Nazionale delle Ricerche<br /> |Has Timepoint=1-6-2015; 11-4-2019<br /> |Has Location=Italy<br /> |Has Virtue And Value=Dignity; Responsibility; Fairness; Diligence; accuracy<br /> }}</div>

Hughdd https://embassy.science:443/wiki-wiki/index.php?title=Resource:9cde8f03-0578-4309-a81a-bdbd23f89fda&diff=1654 2020-05-06T10:17:40Z

<p>Hughdd: </p> <hr /> <div>{{Resource<br /> |Resource Type=Guidelines<br /> |Title=Linee guida per l'intergrita nella ricerca<br /> |Is About=This document is the CNR (Centro Nazionale per la Ricerca) guidelines on research integrity. A first version was published and updated in 2019.<br /> |Important Because=This document describes the RI framework for CNR institutes.<br /> |Important For=Researchers<br /> }}<br /> {{Link<br /> |Has Link=https://www.cnr.it/sites/default/files/public/media/doc_istituzionali/linee-guida-integrita-nella-ricerca-cnr-commissione_etica.pdf?v=1<br /> }}<br /> {{Related To}}<br /> {{Tags<br /> |Involves=Commissione per l'Etica della Ricerca e la Biotica del CNR<br /> |Has Timepoint=1-6-2015; 11-4-2019<br /> |Has Location=Italy<br /> |Has Virtue And Value=Dignity; Responsibility; Fairness; Diligence; accuracy<br /> }}</div>

Hughdd https://embassy.science:443/wiki-wiki/index.php?title=Resource:Daade243-b993-4c37-97fc-c1c571583055&diff=1653 2020-05-06T10:12:11Z

<p>Hughdd: </p> <hr /> <div>{{Resource<br /> |Resource Type=Guidelines<br /> |Title=The Concordat to Support Research Integrity<br /> |Is About=The concordat provides a national framework for good research conduct and its governance. It was signed by diverse research institutions in the UK (see tags), who then worked to implement the framework, It was first published in 2012, and revised in 2019.<br /> |Important Because=It provides a national framework for research integrity in the UK.<br /> |Important For=Researchers; All stakeholders in research<br /> |Has Best Practice=The concordat targets four main areas:<br /> <br /> *Maintaining the highest standards of research integrity<br /> *Embedding a culture of research integrity<br /> *Dealing with allegations of research misconduct<br /> *A commitment to strengthening research integrity<br /> <br /> &lt;br /&gt;<br /> }}<br /> {{Link<br /> |Has Link=https://www.universitiesuk.ac.uk/policy-and-analysis/reports/Documents/2019/the-concordat-to-support-research-integrity.pdf<br /> }}<br /> {{Related To}}<br /> {{Tags<br /> |Involves=Universities UK; Department for the Economy, Northern Ireland; Higher Education Funding Council for Wales; National Institute for Health Research; Scottish Funding Council; UK Research and Innovation; Universities UK; Wellcome Trust<br /> |Has Timepoint=2012; October 2019<br /> |Has Location=United Kingdom<br /> |Has Virtue And Value=Honesty; rigour; Transparency; care; respect; accountability<br /> }}</div>

Hughdd https://embassy.science:443/wiki-wiki/index.php?title=Resource:Daade243-b993-4c37-97fc-c1c571583055&diff=1652 2020-05-06T10:11:06Z

<p>Hughdd: </p> <hr /> <div>{{Resource<br /> |Resource Type=Guidelines<br /> |Title=The Concordat to Support Research Integrity<br /> |Is About=The concordat provides a national framework for good research conduct and its governance. It was signed by diverse research institutions in the UK, who then worked to implement the framework, It was first published in 2012, and revised in 2019.<br /> |Important Because=It provides a national framework for research integrity in the UK.<br /> |Important For=Researchers; All stakeholders in research<br /> |Has Best Practice=The concordat targets four main areas:<br /> <br /> *Maintaining the highest standards of research integrity<br /> *Embedding a culture of research integrity<br /> *Dealing with allegations of research misconduct<br /> *A commitment to strengthening research integrity<br /> <br /> &lt;br /&gt;<br /> }}<br /> {{Link<br /> |Has Link=https://www.universitiesuk.ac.uk/policy-and-analysis/reports/Documents/2019/the-concordat-to-support-research-integrity.pdf<br /> }}<br /> {{Related To}}<br /> {{Tags<br /> |Involves=Universities UK<br /> |Has Timepoint=2012; October 2019<br /> |Has Location=United Kingdom<br /> |Has Virtue And Value=Honesty; rigour; Transparency; care; respect; accountability<br /> }}</div>

Hughdd https://embassy.science:443/wiki-wiki/index.php?title=Resource:Daade243-b993-4c37-97fc-c1c571583055&diff=1651 2020-05-06T10:10:50Z

<p>Hughdd: </p> <hr /> <div>{{Resource<br /> |Resource Type=Guidelines<br /> |Title=The Concordat to Support Research Integrity<br /> |Is About=The concordat provides a national framework for good research conduct and its governance. It was signed by diverse research institutions in the UK, who then worked to implement the framework. <br /> <br /> It was first published in 2012, and revised in 2019.<br /> |Important Because=It provides a national framework for research integrity in the UK.<br /> |Important For=Researchers; All stakeholders in research<br /> |Has Best Practice=The concordat targets four main areas:<br /> <br /> * Maintaining the highest standards of research integrity<br /> * Embedding a culture of research integrity<br /> * Dealing with allegations of research misconduct<br /> * A commitment to strengthening research integrity<br /> <br /> &lt;br /&gt;<br /> }}<br /> {{Link<br /> |Has Link=https://www.universitiesuk.ac.uk/policy-and-analysis/reports/Documents/2019/the-concordat-to-support-research-integrity.pdf<br /> }}<br /> {{Related To}}<br /> {{Tags<br /> |Involves=Universities UK<br /> |Has Timepoint=2012; October 2019<br /> |Has Location=United Kingdom<br /> |Has Virtue And Value=Honesty; rigour; Transparency; care; respect; accountability<br /> }}</div>

Hughdd