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creation date: 2026-08-15T15:36:34+02:00
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Consent for publication (Participant)
type: Subject
type: Category:Theme
type: Category:Pages with reference errors
page: https://embassy.science:443/wiki/Theme-3AAbd41d27-2D98dd-2D4b14-2Dbf75-2D2f596c071d35
wiki namespace: 7600
wiki page content language: en
has best practice: There is no single uniform consent form for all journals, only general principles and guidance provided by committees for publication ethics. The British Medical Journal (BMJ) Ethics Committee, for example, offers recommendations on how to obtain the participant’s consent. The consent is necessary even if identifying details are removed. Participant’s personal information will not be published if he or she refuses to give consent, with the exception of high importance to public health.'"`UNIQ--ref-00000017-QINU`"' Some recommendations to publish research findings without participant’s consent include these conditions: -the participant cannot be found in order to give his consent or it is impossible or unreasonable to expect to gain consent from the patient or his next-of-kin -the article contains data which importance for public health overrides the importance of participant’s consent -it is expected that a participant would not object to the publication of the case. This requires an assessment of the intrusiveness of the disclosure and potential embarrassment or distress -the case is anonymized so that the participant’s identity will not be revealed.'"`UNIQ--ref-00000018-QINU`"' The committee has also stated that giving absolute priority to confidentiality would hold back medical research and education, so there must be a balance between confidentiality and the need for data sharing.'"`UNIQ--ref-00000019-QINU`"' Committee on Publication Ethics (COPE) has released a [https://publicationethics.org/files/u7140/Discussion_document_on_Best_Practice_for_Consent_for_Publishing_Medical_Case_Reports.pdf Discussion document on Best Practice for Consent for Publishing Medical Case Reports]. The document stated that authors are obliged to collect the signed consent forms, not journals, and that forms should be used for cases where an individual or a group of individuals could be identified.'"`UNIQ--ref-0000001A-QINU`"' It concluded that no single form would be adequate for all…
has good practice and misconduct: Consent
has good practice and misconduct: Confidentiality
has good practice and misconduct: Publication ethics
has good practice and misconduct: Research with humans
has good practice and misconduct: Data management
has virtue and value: Respect
important because: Publishing certain research data, obtained in circumstances of confidentiality between researcher and participant, can be made accessible to the rest of the world'"`UNIQ--ref-00000011-QINU`"' and this can mean breaching of that confidentiality. This is why research participants need to know which data will be revealed to the public. In order to submit and subsequently publish case reports, authors have to obtain participant’s consent for publication. For example, in the case of unusual diagnosis in medical research or some details regarding the participant’s history (age, sex or occupation) along with the author’s name and affiliation that can reveal the participant’s identity, the participant’s consent is indispensable.'"`UNIQ--ref-00000012-QINU`"' Some of the examples of identifying information are descriptions of individual case histories, photographs, videos, x-rays or genetic pedigrees.'"`UNIQ--ref-00000013-QINU`"' Researchers should inform participants that anyone who has access to Internet would be able to view the published article.'"`UNIQ--ref-00000014-QINU`"' Consent for publication should be obtained from participants or their legal guardians if the participants are under 16. In case of deceased persons, consent should be obtained by the deceased family or relatives.'"`UNIQ--ref-00000015-QINU`"' Consent is voluntarily and participant is free to withdraw it before the publication.'"`UNIQ--ref-00000016-QINU`"'
important for: Researcher
important for: Research Participant
important for: Journal Editor
involves: John Fletcher
involves: Diane Kelsall
is about: Participant’s consent for publication of case reports is different from consent to participate in research.'"`UNIQ--ref-0000000E-QINU`"' Since relationship between a researcher and a research participant is confidential, publishing case history in a journal can lead to participant’s identification. This is why researchers should not publish or share identifiable data from the research without participant’s consent.'"`UNIQ--ref-0000000F-QINU`"''"`UNIQ--ref-00000010-QINU`"'
main category: Category:Theme
related to research area: LS - Life Sciences
related to research area: LS 07.08 - Health services, health care research
theme type: Good Practices
title: Consent for publication (Participant)
wiki page creation date: 2021-06-11T09:21:01Z
creation date#aux: 2459376.8895949
display title of: Consent for publication (Participant)
last editor is: User:0000-0003-4024-8548
wiki page modification date: 2026-06-02T15:54:18Z
modification date#aux: 2461194.1627083
is a new page: false
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page creator: User:0000-0003-3048-2023
page author: User:0000-0003-4024-8548
page author: User:0000-0003-3048-2023

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