Themes

SIENNA - Stakeholder-informed ethics for new technologies with high socio-economic and human rights impact

What is this about?

The SIENNA project (2017-2021) addressed ethical issues in human genomics, human enhancement and AI and robotics. In collaboration with a variety of stakeholders, SIENNA has identified and assessed ethical and socio-economic issues, public opinions, legal regulation and human rights implications of each technology. It has developed ethical frameworks based on social, ethical and legal analyses. SIENNA has developed (inter alia):

an International Code of Conduct for Data Sharing in Genomics
Ethics guidelines for human enhancement technologies
a Multi-Stakeholder Strategy and practical tools for ethical AI and Robotics, including ethics by design

Based on the lessons learned in the project, SIENNA has also developed generalised methods to conduct ethical and legal analyses of new and emerging technologies and to develop guidance and tools to promote ethics for the development, deployment and use of these technologies.

Why is this important?

While genomics, human enhancement and AI and robotics technologies offer significant benefits to individuals and society, they also present major ethical and human rights challenges, e.g., in relation to human autonomy, equality, personal liberty, privacy, and accountability.

For whom is this important?

Academic institutionsAcademic staffAll stakeholders in researchClinical ethics consultantsCivil society organisationsClinical researchersCollaborating researchersDecision makersEthics committee membersFundersIndustryPatientsPolicy makersRegulatorsResearch Ethics Committees

Giulia Inguaggiato, Natalie Evans, Andrijana Perković Paloš, Yasemin J. Erden contributed to this theme. Latest contribution was Oct 22, 2021

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