View source for Theme:5682ba3d-ab7d-42e7-8a3a-684360ee216b

{{Theme
|Theme Type=Good Practices
|Has Parent Theme=Theme:721dc5c7-8e47-41ca-a7b8-73d6a225c3c3
|Title=SIENNA - Stakeholder-informed ethics for new technologies with high socio-economic and human rights impact
|Is About=The SIENNA project (2017-2021) addressed ethical issues in''' human genomics, human enhancement and AI and robotics'''. In collaboration with a variety of stakeholders, SIENNA has identified and assessed ethical and socio-economic issues, public opinions, legal regulation and human rights implications of each technology. It has developed ethical frameworks based on social, ethical and legal analyses. SIENNA has developed (inter alia):

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*an International Code of Conduct for Data Sharing in Genomics
*Ethics guidelines for human enhancement technologies
*a Multi-Stakeholder Strategy and practical tools for ethical AI and Robotics, including ethics by design

Based on the lessons learned in the project, SIENNA has also developed generalised methods to conduct ethical and legal analyses of new and emerging technologies and to develop guidance and tools to promote ethics for the development, deployment and use of these technologies.
|Important Because=While genomics, human enhancement and AI and robotics technologies offer significant benefits to individuals and society, they also present major ethical and human rights challenges, e.g., in relation to human autonomy, equality, personal liberty, privacy, and accountability.
|Important For=Academic institutions; Academic staff; All stakeholders in research; Clinical ethics consultants; Civil society organisations; Clinical researchers; Collaborating researchers; Decision makers; Ethics committee members; Funders; Industry; Patients; Policy makers; Regulators; Research Ethics Committees
}}
{{Related To
|Related To Resource=Resource:Baeaad30-3c8d-4812-8a50-ca4aeb593707
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{{Tags
|Involves=EUREC; ENRIO; SIENNA
|Related To Research Area=SH - Social Sciences and Humanities; SH 02.11 - Social studies of science and technology; LS 02 - Genetics, Genomics, Bioinformatics and Systems Biology; PE 06.07 - Artificial intelligence, intelligent systems, multi agent systems; LS 09.10 - Biomimetics; LS - Life Sciences; PE 06.09 - Human computer interaction and interface, visualization and natural language processing; PE 07.10 - Robotics; LS 07.01 - Medical engineering and technology; LS 07.11 - Medical ethics
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