View source for Instruction:B5de12ed-63e5-49de-b5bb-b32ac751825d

{{Instruction
|Title=Research Ethics in a Global Environment
|Has Related Initiative=Initiative:Ce2c53d3-722d-48f5-8e0d-140306b56c6e
|Instruction Goal=To encourage learners to consider the types of ethics issues that are associated with research in a global environment and how they might be addressed.

'''The learning outcomes'''

At the end of this module, learners will be able to: 

# Discuss the specific ethics challenges associated with international collaborative research. 
# Explain when benefit sharing is required and what constitutes fair benefit sharing.  
# Distinguish between different types of ethics dumping and identify the causes. 
# Explain the measures that can be taken to prevent ethics dumping.
|Has Duration=2
|Important For=All stakeholders in research
}}
{{Custom TabContent Trainee Open}}
{{Instruction Steps Foldout Trainee}}
{{Instruction Perspective Trainee}}
{{Instruction Step Trainee
|Instruction Step Title=International Collaborative Research
|Instruction Step Text=[[File:Env1.png|center|frameless|600x600px]]
|Instruction Step Interactive Content=Resource:H5P-176
}}
{{Instruction Step Trainee
|Instruction Step Title=Main Benefits of International Collaborative Research
|Instruction Step Text=[[File:M1.png|center|frameless|600x600px]]



Some of the benefits of international collaborative research include that it:
|Instruction Step Interactive Content=Resource:H5P-177
}}
{{Instruction Step Trainee
|Instruction Step Title=Francis Kombe - Collaborative research
|Instruction Step Text=[[File:Mm2.png|center|frameless|600x600px]]



In the rest of this module, we will be focussing specifically upon research collaborations that bring together parties from higher-income and lower-income settings. Often, these partnerships involve local groups or communities who are not researchers but nevertheless contribute to the research in a significant manner via participation or knowledge sharing etc. While these partnerships can be extremely fruitful for all concerned, they can also pose challenges for the equitable distribution of research benefits as described in the next section.
|Instruction Step Interactive Content=Resource:H5P-179
}}
{{Instruction Step Trainee
|Instruction Step Title=Research - Who Benefits?
|Instruction Step Text=[[File:Mm3.png|center|frameless|600x600px]]
|Instruction Step Interactive Content=Resource:H5P-181
}}
{{Instruction Step Trainee
|Instruction Step Title=Jan Van Der Westhuizen
|Instruction Step Text=[[File:Mm4.png|center|frameless|600x600px]]



Sometimes, the people who own or provide access to the resources are left with no benefits at all. For a long time, this was the case for the San Indigenous peoples of South Africa. You can hear from members of the San talk about protecting their Indigenous knowledge in this video. Listen to Jan Van Der Westhuizen talk about protecting San Indigenous knowledge.
|Instruction Step Interactive Content=Resource:H5P-182
}}
{{Instruction Step Trainee
|Instruction Step Title=What is Benefit Sharing?
|Instruction Step Text=[[File:Mm5.png|center|frameless|600x600px]]



Exploitation of one or more partners can be a problem in international collaborative research because the benefits of research are not always distributed evenly. Researchers must take care to ensure that everyone involved is treated fairly.
|Instruction Step Interactive Content=Resource:H5P-183
}}
{{Instruction Step Trainee
|Instruction Step Title=What Constitutes Appropriate Benefits?
|Instruction Step Text=[[File:Mm6.png|center|frameless|600x600px]]



Benefit sharing is a legal requirement for all countries that have adopted the CBD. But what constitutes appropriate benefits for those who share their resources in research? Click on the hotspots to see some suggestions.


[[Nagoya Protocol on Access to Genetic Resources and the Fair and Equitable Sharing of Benefits Arising from their Utilization to the Convention on Biological Diversity]]


Appropriate benefit sharing arrangements may include a package of both monetary and non-monetary benefits. Most important is that fair benefits arrangements are discussed and agreed locally before the research begins.
|Instruction Step Interactive Content=Resource:H5P-186
}}
{{Instruction Step Trainee
|Instruction Step Title=Appropriate Benefit Sharing
|Instruction Step Text=[[File:Mm8.png|center|frameless|600x600px]]



The last word on benefit sharing goes to Reverend Mario Mahongo, who was Chair of the South African San Council, 2000 – 2018.


What I want to say is, I think there should be a benefit for the people who are being researched. I don’t want researchers to see us as museums that cannot speak for themselves and that don’t expect something in return. We are humans who deserve support. At the end of the day, the researcher is happy because he received what he wanted from us, but we also need to be happy in what we receive from him because we also want to benefit from the research. So, we will allow them to do the research, but it must be based on equality, not one-sided.  
|Instruction Step Interactive Content=Resource:H5P-189
}}
{{Instruction Step Trainee
|Instruction Step Title=Ethics Dumping
|Instruction Step Text=[[File:Mm9.png|center|frameless|600x600px]]



Humanities’ challenges require global research, yet global research can have a dark side. Ethics dumping. When researchers from privileged settings offshore unethical research to lower income settings, that's ethics dumping. It can happen on purpose, but also due to lack of awareness and cultural misunderstandings.
|Instruction Step Interactive Content=Resource:H5P-191
}}
{{Instruction Step Trainee
|Instruction Step Title=Preventing Ethics Dumping
|Instruction Step Text=[[File:Mm10.png|center|frameless|600x600px]]



The TRUST Code, a global code of conduct for equitable research partnerships, was designed to address ethics dumping. You can watch two videos here about the code: one gives an overview of the code, and one introduces its 23 articles.
|Instruction Step Interactive Content=Resource:H5P-189
}}
{{Instruction Step Trainee
|Instruction Step Title=Preventing Ethics Dumping cont.
|Instruction Step Text=[[File:Mm11.png|center|frameless|600x600px]]



In the next video you will hear from some of the people who were involved in developing the TRUST Code, summarizing the 23 articles that promote equitable research partnerships in international collaborative research.
|Instruction Step Interactive Content=Resource:H5P-192
}}
{{Instruction Step Trainee
|Instruction Step Title=The !Khwas ttu Kids
|Instruction Step Text=[[File:Mm12.png|center|frameless|600x600px]]



The final video in this module is the winning video from the [https://www.globalewerteallianz.ch/en/ FGVA] sponsored rap, dance and music competition held for the TRUST project. "We are the San", from !Khwa ttu Kids is a representation of the values of fairness, respect, care and honesty through song, film and dance. Congratulations to the team at [https://www.khwattu.org/ !Khwa ttu].


If you want to learn more, please visit the bibliography and further reading page for some relevant resources.  
|Instruction Step Interactive Content=Resource:H5P-194
}}
{{Instruction Step Trainee
|Instruction Step Title=End of Module Quiz
|Instruction Step Text=[[File:Mm13.png|center|frameless|600x600px]]



You can try these questions to see whether your learning from this module addresses the intended learning outcomes. No one else will see your answers. No personal data is collected.
|Instruction Step Interactive Content=Resource:H5P-195
}}
{{Instruction Step Trainee
|Instruction Step Title=Module Evaluation
|Instruction Step Text=Thank you for taking this irecs module! 

Your feedback is very valuable to us and will help us to improve future training materials. 

We would like to ask for your opinions:

1. To improve the irecs e-learning modules

2. For research purposes to evaluate the outcomes of the irecs project

To this end we have developed a short questionnaire, which will take from 5 to 10 minutes to answer. Your anonymity is guaranteed; you won’t be asked to share identifying information or any sensitive information. Data will be handled and stored securely and will only be used for the purposes detailed above. You can find the questionnaire by clicking on the link below. 

This link will take you to a new page; [https://eur01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fforms.office.com%2Fe%2FK5LH08FyvQ&data=05%7C02%7CKChatfield%40uclan.ac.uk%7Cde983f54bcc64d66a02908dcd0b50ccd%7Cebf69982036b4cc4b2027aeb194c5065%7C0%7C0%7C638614723283127814%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C0%7C%7C%7C&sdata=shLTj7qPsGmGj0JOoPRZV2LhKbl5XOOhAbo7F%2FWzW7s%3D&reserved=0 https://forms.office.com/e/K5LH08FyvQ]

Thank you!
}}
{{Instruction Step Trainee
|Instruction Step Title=Glossary of Terms
|Instruction Step Text=[[File:Mm15.png|center|frameless|600x600px]]



'''Equality'''

Equality implies that people are treated equally in terms of rights, or access to services etc. without discrimination or unfair advantage. In the context of social justice and human rights, equality involves equal access to resources and opportunities, as well as ensuring that individuals are not disadvantaged or marginalised. This can include efforts to address systemic inequalities, discrimination, and barriers to full participation in society.


'''Equity'''

Equity refers to fairness in the distribution of resources, opportunities, and rights. It involves ensuring that everyone has access to what they need to thrive and reach their full potential, regardless of their background, identity, or circumstances. Unlike equality, which aims to treat everyone the same, equity recognizes that different individuals or groups may require different levels of support or resources to achieve equal outcomes.

[[File:Mm16.png|center|frameless|600x600px]]



'''Intellectual property rights'''

Intellectual property rights (IPR) refer to the legal rights granted to individuals or entities to protect their creations or inventions, which can include inventions, literary and artistic works, designs, symbols, names, and images used in commerce. These rights typically include patents, copyrights, trademarks, and trade secrets, granting creators or owners exclusive rights to use and control their intellectual property for a specified period. These rights enable individuals and organizations to benefit financially from their innovations and creativity while fostering innovation and creativity by providing incentives for research, development, and investment.


'''Traditional knowledge'''

Traditional knowledge encompasses the accumulated wisdom, practices, and innovations passed down through generations within a specific culture or community. It includes knowledge about the natural environment, biodiversity, agricultural practices, healing methods, cultural expressions, and other aspects of traditional lifestyles. Traditional knowledge is often orally transmitted and deeply rooted in local customs, beliefs, and experiences. It plays a vital role in sustainable development, biodiversity conservation, and the preservation of cultural heritage.
}}
{{Instruction Step Trainee
|Instruction Step Title=Bibliography
|Instruction Step Text=[[File:Mm17.png|center|frameless|600x600px]]



'''Articles and books'''

Chatfield, K., Schroeder, D., Guantai, A., Bhatt, K., Bukusi, E., Adhiambo Odhiambo, J., ... & Kimani, J. (2021). Preventing ethics dumping: the challenges for Kenyan research ethics committees. Research Ethics, 17(1), 23-44. Available at: https://journals.sagepub.com/doi/full/10.1177/1747016120925064 (Free to download)

Schroeder, D. (2007). Benefit sharing: it’s time for a definition. Journal of medical ethics, 33(4), 205-209.

Schroeder, D., & Pisupati, B. (2010). Ethics, justice and the convention on biological diversity. Available at: https://clok.uclan.ac.uk/9695/1/Ethics,%20Justice%20and%20the%20convention.pdf (Free to download)

Schroeder, D., Cook, J., Hirsch, F., Fenet, S., & Muthuswamy, V. (2018). Ethics dumping: case studies from north-south research collaborations. Springer Nature. Available at: https://link.springer.com/book/10.1007/978-3-319-64731-9 (Free to download)

Schroeder, D., Chatfield, K., Singh, M., Chennells, R., & Herissone-Kelly, P. (2019). Equitable research partnerships: a global code of conduct to counter ethics dumping (p. 122). Springer Nature. Available at: https://link.springer.com/book/10.1007/978-3-030-15745-6 (Free to download)

Schroeder, D., Chatfield, K., Muthuswamy, V., & Kumar, N. K. (2021). Ethics Dumping–How not to do research in resource-poor settings. Journal of Academics Stand Against Poverty, 1(1), 32-55. Available at: https://journalasap.org/index.php/asap/article/view/4 (Free to download)

Wynberg, R., Schroeder, D., & Chennells, R. (2009). Indigenous peoples, consent and benefit sharing: lessons from the San-Hoodia case (Vol. 15). Berlin: Springer. 

'''Research ethics codes'''

The San Code of Research Ethics, available from: [https://www.hra.nhs.uk/about-us/committees-and-services/res-and-recs/ https://www.globalcodeofconduct.org/affiliated-codes/]

The TRUST Global Code of Conduct for Equitable Research Partnerships, available from:  [https://allea.org/ https://www.globalcodeofconduct.org/]

'''Videos'''

More videos can be found here: https://www.youtube.com/@trustandprepared1000
}}
{{Instruction Remarks Trainee}}
{{Custom TabContent Close Trainee}}
{{Custom TabContent Trainer Open}}
{{Instruction Steps Foldout Trainer}}
{{Instruction Perspective Trainer}}
{{Instruction Remarks Trainer}}
{{Custom TabContent Close Trainer}}
{{Related To}}
{{Tags}}