Difference between revisions of "Theme:B2bce8c3-65f5-47d9-b6db-573b4b4f926f"
From The Embassy of Good Science
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|Is About=An individual can be identified directly (e.g. by name, address, telephone number, photograph) or indirectly (e.g. by place of work, particular condition). Anonymisation and pseudonymisation remove or minimize the risk of re-identification of individuals by masking the data. When data is anonymised the individuals are no longer identifiable, while in pseudonymised data there is a residual risk of re-identification. | |Is About=An individual can be identified directly (e.g. by name, address, telephone number, photograph) or indirectly (e.g. by place of work, particular condition). Anonymisation and pseudonymisation remove or minimize the risk of re-identification of individuals by masking the data. When data is anonymised the individuals are no longer identifiable, while in pseudonymised data there is a residual risk of re-identification. | ||
|Important Because=Data protection is defined as a fundamental human right and using personal data raises significant ethics issues <ref>1. Article 8, Charter of Fundamental Rights of the European Union</ref>. Pseudonymisation and anonymisation are methods used to protect one's privacy and minimize the risk in the event of unauthorized access. Pseudonymised data are considered personal data and therefore are in the scope of GDPR, unlike irreversibly anonymised data which are no longer defined as personal data and are outside of the scope of GDPR <ref>1. Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (General Data Protection Regulation) (Text with EEA relevance), [2016] OJ L 119/1.</ref> | |Important Because=Data protection is defined as a fundamental human right and using personal data raises significant ethics issues <ref>1. Article 8, Charter of Fundamental Rights of the European Union</ref>. Pseudonymisation and anonymisation are methods used to protect one's privacy and minimize the risk in the event of unauthorized access. Pseudonymised data are considered personal data and therefore are in the scope of GDPR, unlike irreversibly anonymised data which are no longer defined as personal data and are outside of the scope of GDPR <ref>1. Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (General Data Protection Regulation) (Text with EEA relevance), [2016] OJ L 119/1.</ref> | ||
| − | |Important For=PhD Students; Junior researchers | + | <references /> |
| + | |Important For=PhD Students; Junior researchers; Clinical researchers | ||
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{{Related To}} | {{Related To}} | ||
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Revision as of 20:18, 23 February 2021
ThemesAnonymisation and pseudonymisation
What is this about?
An individual can be identified directly (e.g. by name, address, telephone number, photograph) or indirectly (e.g. by place of work, particular condition). Anonymisation and pseudonymisation remove or minimize the risk of re-identification of individuals by masking the data. When data is anonymised the individuals are no longer identifiable, while in pseudonymised data there is a residual risk of re-identification.
Why is this important?
Data protection is defined as a fundamental human right and using personal data raises significant ethics issues [1]. Pseudonymisation and anonymisation are methods used to protect one's privacy and minimize the risk in the event of unauthorized access. Pseudonymised data are considered personal data and therefore are in the scope of GDPR, unlike irreversibly anonymised data which are no longer defined as personal data and are outside of the scope of GDPR [2]
- ↑ 1. Article 8, Charter of Fundamental Rights of the European Union
- ↑ 1. Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (General Data Protection Regulation) (Text with EEA relevance), [2016] OJ L 119/1.
For whom is this important?
Natalie Evans, Blaž Barun contributed to this theme. Latest contribution was Aug 20, 2021
