Difference between revisions of "Resource:F958f656-8789-4a3f-9f27-eabc3521fd55"

From The Embassy of Good Science
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|Title=Embedding a comprehensive  ethical dimension to organoid-based research  and relating technologies (Policy brief)
 
|Title=Embedding a comprehensive  ethical dimension to organoid-based research  and relating technologies (Policy brief)
 
|Has Related Initiative=Initiative:Ab4a81b0-9339-4ea3-9c17-d0f3923d2b3d
 
|Has Related Initiative=Initiative:Ab4a81b0-9339-4ea3-9c17-d0f3923d2b3d
|Is About=This policy brief offers recommendations for future policy documents on organoids and organoid research, deriving from a series of deliberative workshops organised in order to explore attitudes, values and perspectives on organoid research among representatives from the general public, patients, donors, vulnerable groups and CSOs.
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|Is About=The first HYBRIDA Policy Brief provides a concise overview of the initial 12 months of the project’s mapping and engagement efforts related to organoid research. It documents HYBRIDA’s work on mapping existing scientific, regulatory, ethical, and social practices and challenges around organoids, including how terms are used in science and society. One specific output is a “socially robust typology” of key concepts and terminology used in organoid research, aiming to create a clearer, shared language for stakeholders (scientists, policymakers, ethics bodies, public). The brief also summarises the results of public engagement activities exploring public attitudes toward organoids, including concerns, expectations, and understandings. Based on that mapping and engagement, the brief presents recommendations for policy-makers and other stakeholder groups to guide regulation, ethical oversight, and governance of organoid technologies. It stresses the importance of clarifying language, definitions, and conceptual categories as a foundation for policy, regulation, and public trust.
|Important For=Research Ethics Committees; Policy makers; researchers
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|Important Because=The 1st HYBRIDA Policy Brief matters because organoid research is fast-developing and carries significant ethical, social, and regulatory complexities. Without clear and consistent definitions, stakeholders risk miscommunication, regulatory gaps, or inconsistent oversight. The brief’s typology helps build a common conceptual framework, which is essential for creating coherent policies and laws. Moreover, the mapping of public attitudes and stakeholder perspectives provides evidence-based insights for regulators and institutions to respond to societal concerns. This input is crucial for legitimacy, transparency, and social acceptance of new biotechnologies. Finally, by offering concrete recommendations early on, the brief helps orient policymakers toward more informed, proactive governance of organoid technology — helping to avoid reactive or fragmented regulation.
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|Important For=Policy makers; Research Ethics Committees; researchers
 
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Revision as of 13:01, 6 October 2025

Guidelines

Embedding a comprehensive ethical dimension to organoid-based research and relating technologies (Policy brief)

Related Initiative

What is this about?

The first HYBRIDA Policy Brief provides a concise overview of the initial 12 months of the project’s mapping and engagement efforts related to organoid research. It documents HYBRIDA’s work on mapping existing scientific, regulatory, ethical, and social practices and challenges around organoids, including how terms are used in science and society. One specific output is a “socially robust typology” of key concepts and terminology used in organoid research, aiming to create a clearer, shared language for stakeholders (scientists, policymakers, ethics bodies, public). The brief also summarises the results of public engagement activities exploring public attitudes toward organoids, including concerns, expectations, and understandings. Based on that mapping and engagement, the brief presents recommendations for policy-makers and other stakeholder groups to guide regulation, ethical oversight, and governance of organoid technologies. It stresses the importance of clarifying language, definitions, and conceptual categories as a foundation for policy, regulation, and public trust.

Why is this important?

The 1st HYBRIDA Policy Brief matters because organoid research is fast-developing and carries significant ethical, social, and regulatory complexities. Without clear and consistent definitions, stakeholders risk miscommunication, regulatory gaps, or inconsistent oversight. The brief’s typology helps build a common conceptual framework, which is essential for creating coherent policies and laws. Moreover, the mapping of public attitudes and stakeholder perspectives provides evidence-based insights for regulators and institutions to respond to societal concerns. This input is crucial for legitimacy, transparency, and social acceptance of new biotechnologies. Finally, by offering concrete recommendations early on, the brief helps orient policymakers toward more informed, proactive governance of organoid technology — helping to avoid reactive or fragmented regulation.

For whom is this important?

Other information

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