Difference between revisions of "Resource:6db91721-501b-4ec2-aff7-a2c732c4806f"
From The Embassy of Good Science
Marc.VanHoof (talk | contribs) |
Marc.VanHoof (talk | contribs) |
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|Resource Type=Cases | |Resource Type=Cases | ||
|Title=Jesse's intent | |Title=Jesse's intent | ||
− | |Is About=. | + | |Is About=This case describes the story of Jesse, who had a rare disease. A rare disease which must be investigated in more detail. Jesse's father helped doctors and researchers to be able to do research. But the research they did had flaws and was not correct. |
− | |Important Because=. | + | |Important Because=With these rare diseases researchers and doctors only have very few chances to investigate is. If the research has flaws or the data is incorrect, they can't publish any reliable information. |
+ | |||
+ | |||
+ | Journal | ||
+ | |||
+ | Factual | ||
|Important For=Researchers | |Important For=Researchers | ||
}} | }} | ||
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|Involves=Dr. Raper; Dr. Batshaw | |Involves=Dr. Raper; Dr. Batshaw | ||
|Has Timepoint=1998 - 1999 | |Has Timepoint=1998 - 1999 | ||
− | |Has Location=USA | + | |Has Location=USA; United States |
|Has Virtue And Value=Respect | |Has Virtue And Value=Respect | ||
|Has Good Practice And Misconduct=Patient safety | |Has Good Practice And Misconduct=Patient safety | ||
|Related To Research Area=Clinical medicine | |Related To Research Area=Clinical medicine | ||
}} | }} |
Revision as of 15:06, 28 April 2020
Resources
Cases
Jesse's intent
What is this about?
This case describes the story of Jesse, who had a rare disease. A rare disease which must be investigated in more detail. Jesse's father helped doctors and researchers to be able to do research. But the research they did had flaws and was not correct.
Why is this important?
With these rare diseases researchers and doctors only have very few chances to investigate is. If the research has flaws or the data is incorrect, they can't publish any reliable information.
Journal