Difference between revisions of "Resource:F52ff816-1035-46a4-bf92-a5f6a349f787"
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Marc.VanHoof (talk | contribs) (Created page with "{{Resource |Resource Type=Cases |Title=Editors and IRBs: quis custodiet ipsos custodes? |Is About=. |Important Because=. |Important For=Researchers }} {{Link |Has Link=https:/...") |
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{{Resource | {{Resource | ||
|Resource Type=Cases | |Resource Type=Cases | ||
| − | |Title= | + | |Title=Ethical Issues in Developing Pharmacogenetic Research Partnerships With American Indigenous Communities |
| − | |Is About=. | + | |Is About=This article describes two factual cases about the use of samples collected from two American indigenous communities (NuuChah-Nulth First Nation in British Columbia, Canada and Havasupai Tribe in the US) for genetic research. In both cases consent was acquired for an initial study, but later, research samples were used for other purposes that the communities had not consented to. |
| − | |Important Because=. | + | |Important Because=It shows two specific cases of having informed consent about further use of research samples are taken for granted. It also provides a brief overview of the legal procedure that affected communities can follow in The United States, and possible rulling of the courte in these cases. |
| − | |Important For=Researchers | + | |Important For=Researchers; Research Integrity Officers; Research Ethics Committees |
}} | }} | ||
{{Link | {{Link | ||
| − | |Has Link=https://onlinelibrary.wiley.com/doi/ | + | |Has Link=https://ascpt.onlinelibrary.wiley.com/doi/abs/10.1038/clpt.2010.303 |
| + | }} | ||
| + | {{Related To | ||
| + | |Related To Resource=Resource:58f8a252-1eb7-42aa-8a66-31f042b632dd | ||
}} | }} | ||
| − | |||
{{Tags | {{Tags | ||
| − | | | + | |Has Timepoint=2004 |
| − | |Has | + | |Has Location=Canada; USA; Arizona State University |
|Has Virtue And Value=Respect | |Has Virtue And Value=Respect | ||
| − | |Has Good Practice And Misconduct= | + | |Has Good Practice And Misconduct=Informed consent; Negligence |
|Related To Research Area=Clinical medicine | |Related To Research Area=Clinical medicine | ||
}} | }} | ||
Latest revision as of 08:26, 12 September 2020
ResourcesCases
Ethical Issues in Developing Pharmacogenetic Research Partnerships With American Indigenous Communities
What is this about?
This article describes two factual cases about the use of samples collected from two American indigenous communities (NuuChah-Nulth First Nation in British Columbia, Canada and Havasupai Tribe in the US) for genetic research. In both cases consent was acquired for an initial study, but later, research samples were used for other purposes that the communities had not consented to.
Why is this important?
It shows two specific cases of having informed consent about further use of research samples are taken for granted. It also provides a brief overview of the legal procedure that affected communities can follow in The United States, and possible rulling of the courte in these cases.
