Canaries in the Mines: Children, Risk, Non-Therapeutic Research, and Justice
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Canaries in the Mines: Children, Risk, Non-Therapeutic Research, and Justice
What is this about?
This is a factual case discussing the Kennedy Krieger lead paint study where a United States Court of Appeals condemned what it called a “non-therapeutic research programme” using children. The court ruled that a parent cannot consent to the participation of a child in “non-therapeutic” research in the state of Maryland . The case involves issues that had been given little attention by the courts, such as children’s participation in research, proxy consent, and the duties of medical researchers towards their subjects. The analysis includes a discussion of the relevance of “therapeutic” versus “non-therapeutic,” importance and value of a study, as well as cost-benefit analysis, the design of the research, and study aims.
Why is this important?
The analysis provides a strategy helping identify when something is amiss with a research proposal and prompts to examine such issues more closely.
