Difference between revisions of "Resource:63435d54-ed0e-4d06-abdc-75a91b5a7661"

From The Embassy of Good Science
 
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|Resource Type=Cases
 
|Resource Type=Cases
 
|Title=History, Ethics and the Presidential Commission on Research in Guatemala
 
|Title=History, Ethics and the Presidential Commission on Research in Guatemala
|Is About=In 2010, President Obama instructed the Presidential Commission for the Study of Bioethical Issues to enquire into research carried out by the US Public Health Service in Guatemala between 1946 and 1948. These studies entailed the deliberate inoculation of unconsenting prisoners, mental asylum patients and soldiers, with venereal disease. There was also evidence of deception and secrecy. The Commission’s report describes the research as heinous, egregious, unconscionable and unjustifiable, and identified those responsible as morally blameworthy. However, this article argues that the Commission was deficient in its historical analysis, and failed to appreciate particular disease and temporal factors that might cast the research in a slightly different light<ref>Lyons, Barry. "History, ethics and the Presidential Commission on Research in Guatemala." ''Public Health Ethics'' 7.3 (2014): 211-224.</ref>. This is a factual case.
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|Is About=This is a factual case about a medical study that took place in a Guatemalan prison. In this study, experiments into syphilis infection were performed on military personnel, prisoners, asylum inmates, and orphans, without their consent. Rather than giving a detailed description of events, like other reports on this subject have already done, the article reconstructs the research environment that allowed this unethical study to take place.
<references />
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|Important Because=To prevent future research misconduct and unethical behaviour it is important to understand which factors make it possible for such practices to take place. In addition and as noted in the article, it is important to do justice not only to the victims of research misconduct but to all those involved, especially when the accused are deceased. When examining past cases of research misconduct it is important to keep in mind the ethical standards at the time the research was conducted, rather than applying our current ethical frameworks to the case. The analysis presented in this article contributes to our understanding of the various aspects of retrospective assessment of research misconduct cases.
|Important Because=It is important to be critical about the Commission's analysis.
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|Important For=Researchers; Research Ethics Committees
|Important For=Researchers
 
 
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{{Related To
 
{{Related To
|Related To Theme=Theme:9ac8c1db-f98b-41ee-858d-a8c93a647108
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|Related To Theme=Theme:9ac8c1db-f98b-41ee-858d-a8c93a647108;Theme:0d054575-ca21-4209-b7c5-6120fc0ed647
 
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{{Tags
 
{{Tags
|Involves=Dr John C. Cutler; Carlos Funes
 
 
|Has Timepoint=1946
 
|Has Timepoint=1946
 
|Has Location=Guatemala
 
|Has Location=Guatemala
|Has Virtue And Value=Respect
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|Has Virtue And Value=Respect; Autonomy; Dignity; Respect
|Has Good Practice And Misconduct=Patient safety; Equipoise; Informed consent; Vulnerable population
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|Has Good Practice And Misconduct=Patient safety; Equipoise; Informed consent; Vulnerable population; Balancing harms and benefits
 
|Related To Research Area=Clinical medicine
 
|Related To Research Area=Clinical medicine
 
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Latest revision as of 17:16, 19 August 2021

Cases

History, Ethics and the Presidential Commission on Research in Guatemala

What is this about?

This is a factual case about a medical study that took place in a Guatemalan prison. In this study, experiments into syphilis infection were performed on military personnel, prisoners, asylum inmates, and orphans, without their consent. Rather than giving a detailed description of events, like other reports on this subject have already done, the article reconstructs the research environment that allowed this unethical study to take place.

Why is this important?

To prevent future research misconduct and unethical behaviour it is important to understand which factors make it possible for such practices to take place. In addition and as noted in the article, it is important to do justice not only to the victims of research misconduct but to all those involved, especially when the accused are deceased. When examining past cases of research misconduct it is important to keep in mind the ethical standards at the time the research was conducted, rather than applying our current ethical frameworks to the case. The analysis presented in this article contributes to our understanding of the various aspects of retrospective assessment of research misconduct cases.

For whom is this important?

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