Supporting Health Data Cooperatives in Europe (Policy brief)

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What is this about?

The Ensuring Long-Term Functioning of Citizen Observatories policy brief explains how Citizen Observatories (COs) community-led networks where citizens collect and share scientific data can be sustained over time to meaningfully contribute to policymaking and environmental monitoring in Europe. COs represent a form of grassroots science that engages people directly in monitoring issues like environmental change and urban governance, often using mobile and web technologies. The brief outlines key practices and structures that support CO longevity, including establishing clear open-access policies for data management, offering structured public training on data collection and use, and detailing educational activities that boost participation. It also recommends gender mainstreaming and inclusivity strategies to ensure diversity and equal representation, and the adoption of ethical guidelines to protect privacy, research integrity, and inclusion for all participants.

Why is this important?

This brief is important because it identifies practical, actionable measures needed to sustain citizen science efforts that go beyond short-term projects. Long-lasting Citizen Observatories can provide continuously updated, locally relevant data that strengthens environmental decision-making and democratic engagement. By focusing on inclusivity, clarity in data practices, and ethical safeguards, the brief helps ensure that COs remain trustworthy, accessible, and impactful for both participants and policymakers. Strengthening COs contributes to scientific literacy, community empowerment, and evidence-informed governance across Europe.

For whom is this important?

Civil society and community groupsEU policymakers and regulatorsFunders and institutionsResearchers and CO coordinators

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